Having our omic cake and eating it too: Evaluating User Response to using Blockchain Technology for Private & Secure Health Data Management and Sharing
This addresses privacy and security issues in personalized healthcare research, but it is incremental as it builds on existing blockchain applications in health data.
The paper tackles the challenge of private and secure management and sharing of individual omics health data by developing and evaluating a prototype blockchain solution, with results focusing on user response to address ethical, legal, social, and cognitive constraints through interface design.
This paper reports on the development and evaluation of a prototype blockchain solution for private and secure individual omics health data management and sharing. This solution is one output of a multidisciplinary project investigating the social, data and technical issues surrounding application of blockchain technology in the context of personalized healthcare research. The project studies potential ethical, legal, social and cognitive constraints of self-sovereign healthcare data management and sharing, and whether such constraints can be addressed through careful user interface design of a blockchain solution.