Different Length, Different Needs: Qualitative Analysis of Threads in Online Health Communities
This research addresses the problem of understanding user engagement and support dynamics in online health communities, with implications for improving forum design to better facilitate community building, though it is incremental in nature.
The study analyzed 456 posts in 56 threads from an online health community's Dermatology sub-forum to understand how participation levels relate to contributions. It found that short threads focus on solving individual health issues with diagnosis and advice, while long threads build collective knowledge and community around chronic and rare conditions.
Online health communities provide a knowledge exchange platform for a wide range of diseases and health conditions. Informational and emotional support helps forum participants orient around health issues beyond in-person doctor visits. So far, little is known about the relation between the level of participation and participants' contributions in online health communities. To gain insights on the issue, we analyzed 456 posts in 56 threads from the Dermatology sub-forum of an online health community. While low participation threads (short threads) revolved around solving an individual's health issue through diagnosis suggestions and medical advice, participants in high participation threads (long threads) built collective knowledge and a sense of community, typically discussing chronic and rare conditions that medical professionals were unfamiliar with or could not treat effectively. Our results suggest that in short threads an individual's health issue is addressed, while in long threads, sub-communities about specific rare and chronic diseases emerge. This has implications for the user interface design of health forums, which could be developed to better support community building elements, even in short threads.