Large-scale data extraction from the UNOS organ donor documents
This work addresses the challenge of making organ transplantation data analyzable for researchers and healthcare professionals, though it is incremental as it builds on existing data extraction methods.
The paper tackled the problem of extracting and structuring data from large-scale, heterogeneous PDF documents in the UNOS organ donor database, resulting in a comprehensive, analyzable dataset from 2022 OPTN data that is larger than any previously available.
In this paper we focus on three major task: 1) discussing our methods: Our method captures a portion of the data in DCD flowsheets, kidney perfusion data, and Flowsheet data captured peri-organ recovery surgery. 2) demonstrating the result: We built a comprehensive, analyzable database from 2022 OPTN data. This dataset is by far larger than any previously available even in this preliminary phase; and 3) proving that our methods can be extended to all the past OPTN data and future data. The scope of our study is all Organ Procurement and Transplantation Network (OPTN) data of the USA organ donors since 2008. The data was not analyzable in a large scale in the past because it was captured in PDF documents known as ``Attachments'', whereby every donor's information was recorded into dozens of PDF documents in heterogeneous formats. To make the data analyzable, one needs to convert the content inside these PDFs to an analyzable data format, such as a standard SQL database. In this paper we will focus on 2022 OPTN data, which consists of $\approx 400,000$ PDF documents spanning millions of pages. The entire OPTN data covers 15 years (2008--20022). This paper assumes that readers are familiar with the content of the OPTN data.