HCJan 5, 2022
Different Length, Different Needs: Qualitative Analysis of Threads in Online Health CommunitiesDaniel Diethei, Ashley Colley, Julian Wienert et al.
Online health communities provide a knowledge exchange platform for a wide range of diseases and health conditions. Informational and emotional support helps forum participants orient around health issues beyond in-person doctor visits. So far, little is known about the relation between the level of participation and participants' contributions in online health communities. To gain insights on the issue, we analyzed 456 posts in 56 threads from the Dermatology sub-forum of an online health community. While low participation threads (short threads) revolved around solving an individual's health issue through diagnosis suggestions and medical advice, participants in high participation threads (long threads) built collective knowledge and a sense of community, typically discussing chronic and rare conditions that medical professionals were unfamiliar with or could not treat effectively. Our results suggest that in short threads an individual's health issue is addressed, while in long threads, sub-communities about specific rare and chronic diseases emerge. This has implications for the user interface design of health forums, which could be developed to better support community building elements, even in short threads.
HCMay 26, 2021
The Usability and Trustworthiness of Medical Eye ImagesDaniel Diethei, Ashley Colley, Lisa Dannenberg et al.
The majority of blindness is preventable, and is located in developing countries. While mHealth applications for retinal imaging in combination with affordable smartphone lens adaptors are a step towards better eye care access, the expert knowledge and additional hardware needed are often unavailable in developing countries. Eye screening apps without lens adaptors exist, but we do not know much about the experience of guiding users to take medical eye images. Additionally, when an AI based diagnosis is provided, trust plays an important role in ensuring in the adoption. This work addresses factors that impact the usability and trustworthiness dimensions of mHealth applications. We present the design, development and evaluation of EyeGuide, a mobile app that assists users in taking medical eye images using only their smartphone camera. In a study (n=28) we observed that users of an interactive tutorial captured images faster compared to audible tone based guidance. In a second study (n=40) we found out that providing disease-specific background information was the most effective factor to increase trustworthiness in the AI based diagnosis. Application areas of EyeGuide are AI based disease detection and telemedicine examinations.
HCSep 11, 2020
Medical Selfies: Emotional Impacts and Practical ChallengesDaniel Diethei, Ashley Colley, Matilda Kalving et al.
Medical images taken with mobile phones by patients, i.e. medical selfies, allow screening, monitoring and diagnosis of skin lesions. While mobile teledermatology can provide good diagnostic accuracy for skin tumours, there is little research about emotional and physical aspects when taking medical selfies of body parts. We conducted a survey with 100 participants and a qualitative study with twelve participants, in which they took images of eight body parts including intimate areas. Participants had difficulties taking medical selfies of their shoulder blades and buttocks. For the genitals, they prefer to visit a doctor rather than sending images. Taking the images triggered privacy concerns, memories of past experiences with body parts and raised awareness of the bodily medical state. We present recommendations for the design of mobile apps to address the usability and emotional impacts of taking medical selfies.
HCMar 28, 2019
The Geography of Pokémon GO: Beneficial and Problematic Effects on Places and MovementAshley Colley, Jacob Thebault-Spieker, Allen Yilun Lin et al.
The widespread popularity of Pokémon GO presents the first opportunity to observe the geographic effects of location-based gaming at scale. This paper reports the results of a mixed methods study of the geography of Pokémon GO that includes a five-country field survey of 375 Pokémon GO players and a large scale geostatistical analysis of game elements. Focusing on the key geographic themes of places and movement, we find that the design of Pokémon GO reinforces existing geographically-linked biases (e.g. the game advantages urban areas and neighborhoods with smaller minority populations), that Pokémon GO may have instigated a relatively rare large-scale shift in global human mobility patterns, and that Pokémon GO has geographically-linked safety risks, but not those typically emphasized by the media. Our results point to geographic design implications for future systems in this space such as a means through which the geographic biases present in Pokémon GO may be counteracted.